Original Publication
Open Access

Learning from the Patient's Perspective: A View from A Patient with Sickle Cell Disease

Published: November 16, 2010 | 10.15766/mep_2374-8265.8207

Included in this publication:

  • Learning from the Patient Packet.docx
  • Learning from the Patient Evaluation.pdf
  • Photo Collage.pdf
  • Patient Perspective Folder
  • Physician Perspective Folder

To view all publication components, extract (i.e., unzip) them from the downloaded .zip file. This publication includes large downloadable files. If you experience difficulty downloading these files, please contact mededportal@aamc.org to receive a free DVD version via mail.


Editor's Note: This publication predates our implementation of the Educational Summary Report in 2016 and thus displays a different format than newer publications.

Abstract

This resource represents how using multimedia artifacts in education is an engaging way to involve patients and health professionals in discussions of chronic disease, specifically sickle-cell anemia and its potential impact on patients. These artifacts can be ideal for helping others understand perspectives on illness shared between and among patients as they seek role models and information on self-management of their condition. The goals of this case presentation are for learners to understand the multiple sides of patient care and how previous experiences influence patients' perceptions and behavior with their care.

The use of multimedia, in this case photographs and videos, can stimulate health care providers to consider the influence illness has on the everyday lives of their patients. Students have found these clips to be useful in stimulating their thinking about the patient's perspective. They also helped them understand the many faces of pain experiences. Finally, patients and adolescents in particular with sickle cell find the images powerful allowing them a path forward as they enter adulthood, demonstrate role models and provide suggestions/insights on how to deal with sickle cell, chronic disease, and health professionals.


Educational Objectives

By the end of this session, learners will be able to:

  1. Interpret biopsychosocial information from the video clips.
  2. Identify key issues in invisible medical conditions.
  3. Identify key issues in stereotyping patients.
  4. Communicate strategies for eliminating disparities, indifference, and harmful misconceptions in the health care for sickle cell patients.
  5. Assist patients in understanding living with chronic illness.
  6. Describe the impact photographs of patients experiences have on the care of patients.

Author Information

  • Monica Lypson, MD: University of Michigan Medical School
  • Andrew Campbell, MD: University of Michigan Department of Pediatrics
  • Paula Ross, MA: University of Michigan School of Public Health
  • Arno Kumagai, MD: University of Michigan
  • Heather Davis, BA: Patient

Disclosures
None to report.

Funding/Support
This research was supported by Friends of the University of Michigan Health System. Friends is a board-governed, volunteer-staffed, non-profit community organization that administers and manages three Health System Gift Shops. The revenue generated from these shops provide funds for patient care programs, amenities and education projects.



Citation

Lypson M, Campbell A, Ross P, Kumagai A, Davis H. Learning from the patient's perspective: a view from a patient with sickle cell disease. MedEdPORTAL. 2010;6:8207. https://doi.org/10.15766/mep_2374-8265.8207